This GERD/Acid Reflux Awareness Week (24-30 November) hits differently when you’ve spent weeks waiting for more answers. I’m sharing my story because for so long I ignored symptoms thinking they would just pass. DENIAL = Don’t even know I’m lying to myself.
The worry, the whatifs, the sleepless nights are a kind of stress people don’t always see.
After seeing my Upper GI surgeon and consultant today, I thought I’d like to raise more awareness of the silent issues and potential cancer risks that can occur if ongoing symptoms are ignored.
Rewind back to July 2012 where it began. I was in an inpatient eating disorder clinic in Cape Town. Under the care of the medical team, the clinic and my GP; I was referred to a specialist gastroenterologist surgeon. I was evaluated and underwent various tests and had a gastroscopy under general anaesthetic as I’d been experiencing chronic heart burn (acid reflux).
This can be caused by many things not just one issue. My eating disorder history was part of many reasons. Today there is tons of information on gut health, inflammation, the vagus nerve, anxiety, depression and the gut/brain connection. Foods with toxins, chemicals added and other pollutants we are exposed to daily. The list is endless. Combine that with life stress events, and it’s a cocktail of dis-ease waiting silently. Unless we become aware, educate ourselves, self manage and look after our body (our home) to the best of our knowledge.
It was a horrible experience to go through. The prognosis was to avoid surgery and manage the symptoms conservatively after being diagnosed with Gastroesophageal Reflux Disease (GERD). In basic terms I have a leaky lower oesophageal sphincter. Ideally this little guy should stay closed when I’m not eating. Mine doesn’t, so stomach acid flows up into the oesophagus. This is that heart burn feeling of acid reflux.
I was told at the time there was a risk of cancer due to gut inflammation and to revisit surgical options if the short term meds prescribed were not working. I cracked on, and continued my eating disorder treatment programme.
After leaving the clinic I ignored it all, put it behind me due to the delayed grief of my father’s passing, stress of my divorce, starting over and I just swept it all under the carpet. I continued with my eating disorder recovery, life and this included moving countries to England two years later.
Fast forward to 2025. Being in denial of symptoms caught up with me the past year, losing my voice for a week, not being able to sing at a live concert in 2024, my voice changing and experiencing various other throat and body symptoms that worsened.
I had a great summer holiday with my best friend and her family from Cape Town in the south of France in July. Thinking all is okay, life took a turn off the track.
It was due to an incident of coughing up blood on a bank holiday weekend in August after returning from France, that my body said “wake up”! This got my attention very quickly. I was pissed off as I had made beach plans, and to see friends later that day. Bank holiday weekend ruined.
Immediately I was seen as an emergency, medical history taken, and was triaged via the fast track two week cancer route as it was quicker than going privately. I am ever so grateful to my doctor and local hospital because within a week I was undergoing an emergency upper gastrointestinal (GI) endoscopy. This time I was awake for the procedure under local anaesthetic and had various other blood tests.
I won’t lie the past three months have been tough emotionally and mentally waiting for the results, and the follow up appointment to see my Upper GI Surgeon and Consultant. Mindful of holistic practices such as tumeric shots for inflammation, looking for quick fixes, managing food triggers, lifestyle changes and deep meditation didn’t help me much. Worried due to time I’ve had to take off work for tests and days I was unwell, it’s not been the greatest chapter of my career this past year.
Yet, I continued to trust in a higher power and believe that answers will come. This has been a big life moment happening for me, not to me. There was no use being a victim, and I’ve had to trust and practice radical acceptance. The body keeps score and emotional stresses over past years are part of my life journey.
Today I saw my surgeon and he went over all my test results and endoscopy images. We created a new management and lifestyle plan to move forward. I’m grateful for the clarity and the chance to protect my health. I was armed with questions from my research, which he answered graciously; as I had been diagnosed with Barrett’s Oesophagus a potential precancerous condition as a result of GERD. There’s no magic wand and it all goes away overnight. Small changes, one day at a time.
Living with chronic acid reflux has taught me that its long term effects aren’t always obvious. Conditions like Barrett’s Oesophagus or silent throat cancer can develop quietly, without dramatic symptoms. That’s why the endoscopy, the biopsies of the growths discovered in my oesophagus and gut; plus the waiting felt so heavy, trying to not live in fear after my medical tests.
But today I received the relief I needed. Confirming no throat cancer, no dangerous changes to the cells and lining of my oesophagus. Benign. A big YAY!
I’m grateful for this outcome, the medical team and monitoring which allows silent problems to be caught early. Some people don’t know they even have throat cancer until it’s too late.
I move forward with more awareness now not fear. I’ll be placed into a NHS screening programme to monitor for any cell changes. I have huge gratitude for the future screenings, not as something to fear; but as vigilance, and I trust that Barrett’s never progresses into cancer.
Thanks to my mum and a tight close circle of friends who supported me during this journey. Knowing my good friends and neighbour had my back to look after my cat and me (if I needed help) when I went into the hospital was a blessing, as my immediate family don’t live locally. I love you! I’m also very grateful to my people leader at work who has been supportive and understanding when I was honest with him. It’s been a challenging period navigating work pressures on top of everything else.
Asking for help has never been my strong trait. This life chapter has shown me that sometimes being a strong independent woman is bullshit. Knowing when to ask and receive help is important, and to let trusted people in and be vulnerable.
Conducting your own research is important and I’m thankful for the Upper GI medical team at the hospital giving me lots of additional information and support. Charities such as Guts UK, and Heartburn Cancer UK have helped me the past few months to educate myself to have my questions answered today by my surgeon. Thank you 🙏🏻 ❤️ .
If you are experiencing similar digestion issues or something feels off, or has changed, and it’s not improving, trust your intuition and see your GP. Early detection can save lives and be treated.
Links for support:
OPA Cancer Charity: https://opa.org.uk/ for Oesophageal and Gastric support
Guts UK : https://gutscharity.org.uk/
Heartburn Cancer UK: Heartburn – Barrett’s – Oesophageal Cancer- Heartburn Cancer UK
If you’re going through a similar situation, waiting for medical test results or finally getting the clarity you need, I hope you get the answers to heal and move forward. I just want you to know you’re not alone, listen to your body as it deserves to be heard.
With love, Suitcase Cally 🩷 ✨
